Eb what is wrong with this picture
So true, Dan! Thank you for your daily focus on servant leadership! Thank you Paul. Your ability to connect ego with blame is useful. Even more important is the connection between service and blame.
What prevents people from taking responsibility? Their mindset tells them different, easy to blame others than being responsible for oneself. How will you take responsibility today? Simple just own it.
We are the victims of our own misgivings. Stand up with your chin up, a stiff lip and be prepared to accept your responsibilities as you expect others to do. Thanks Tim. The search for an easy way to do difficult things is vain. In this case, there is no way to engage in partial blame and partial responsibility. The cure, as you indicate, is swallowing the whole bitter pill.
Thanks Paul. Who can I blame? I knew the pointing to others prevents me from considering my contribution to the situation. Your insight here, Paul, helps me get close to what was gnawing at me. The only question is whether that cause is used to justify lay blame or explain take responsibility. It is our response as leaders that teaches people whether it is safer to lay blame than to take responsibility. And the cause for that is the leader hopefully not the loyal readers of this blog!
Thanks Jennifer. The connection you made with followers is a wake-up call. If we see blamers around us, perhaps the problem lies with our own tendency to blame. Blame may be ego based. Today, I will look for ways to unravel my perception in search truth, not blame. Remember, we have a choice; a choice to take a step back and see things from all angles, perception can change your blame game. The outcome of a situation depends on how we choose to see it. What a fun post!
Thank you Dan. Thanks melrose. The idea of taking different perspectives is another factor in overcoming the blame game. Often, poor leaders blame others out of fear of appearing weak, never embracing the empowerment of taking responsibility, and failing to realize that blaming makes them look weaker.
There are many types of Junctional EB, and all of them cause widespread blistering. Some forms of Junctional EB improve as the patient gets older. A rare form of Junctional EB can be fatal in infancy. Dystrophic EB is caused by a mutation in the collagen 7 gene and can be dominant or recessive. The collagen gene codes for the collagen 7 protein that anchors the deeper layer of skin dermis to the superficial layer of skin epidermis.
When an individual has an abnormal collagen protein, the skin is fragile and separates easily, forming blisters. Both dominant and recessive forms of Dystrophic EB cause scarring.
An individual with dominant Dystrophic EB generally experiences mild to moderate blistering of the skin, but only a small amount of blistering of the mouth, esophagus, and GI tract. This type rarely causes a deformity of the hands or feet caused by the fusion of the fingers or toes pseudosyndactyly. Blistering begins at birth or shortly afterwards.
Much of the skin is covered in blisters and there is extensive internal blistering. Children can develop deformities caused by the recurrent scarring of the fingers and toes pseudosyndactyly and the hands and arms become fixed in stiff positions contractures. It is painfully difficult for a child with recessive Dystrophic EB to ingest food due to the internal blistering that occurs in the mouth, esophagus, and gastrointestinal tract.
Kindler syndrome is an extremely rare form of EB that has features of skin blistering and sensitivity to the sun. All of the genes that cause EB are autosomal, meaning the genes are not carried on the sex-determining X and Y chromosomes. Chromosomes are two sets of instruction manuals that contain information on how to make everything in your body. One instruction manual is from your mother and the other is from your father.
There are also many variants of these 3 main types of EB, each with slightly different symptoms. Read more about symptoms of different types of epidermolysis bullosa. EB is usually diagnosed in babies and young children, as the symptoms can be obvious from birth.
But some milder types of EB may not be diagnosed until adulthood. If it's suspected your child has the condition, they'll be referred to a skin specialist dermatologist. The specialist will carry out tests to determine the type of EB and help come up with a treatment plan. They may take a small sample of skin biopsy to send for testing. In some cases it's possible to test an unborn baby for EB after the 11th week of pregnancy. Prenatal tests include amniocentesis and chorionic villus sampling.
Recommended Reading. October 25, Columns by Patrice Williams. Print This Article. About the Author Patrice Williams Patrice is mother to two boys: 8-year-old Gideon and year-old Jonah, who was diagnosed at birth, in , with junctional epidermolysis bullosa.
She is married to her sort-of high school sweetheart, Matt. They live in North Carolina with their two smelly dogs. Patrice loves reading, spending time with family, and being outside. Her greatest talents are taking naps and eating tacos. She hopes this column will give hope to those living with epidermolysis bullosa and light to those who love them.
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